State Refuses Funding for Treatment of Child with SMA, Donations Now Being Collected Because of the regulations in Hungary, a boy with SMA did not get state aid to fund his recovery. Now... 2022.01.11.
Six More Children With SMA to Receive Free Gene Therapy Another six children with spinal muscular atrophy (SMA) will receive state-funded gene therapy, announced the National Health Insurance Fund Management.... 2021.06.17.
HR Minister: State-Funded SMA Treatment Available to All in Hungary Zolgensma Treatment for children suffering from spinal muscular atrophy (SMA) is now free, Hungary's Minister of Human Resources Miklós Kásler... 2021.06.10.
State Funds SMA-Afflicted Child’s Treatment for First Time Hungary's National Health Insurance Fund (NEAK) has made its first decision to fund a child’s Zolgensma treatment for spinal muscular... 2021.05.19.
Family Succesfully Raises HUF 730 Million for Treatment of SMA Toddler Zsombor The fundraising for Zsombor, who suffers from SMA-1, a rare and extremely dangerous genetic disease, concluded successfully on Wednesday. The... 2021.02.19.
Mesut Özil also Supports SMA Baby Zsombor’s Treatment Fundraising Just like goalkeeper Péter Gulácsi, another well-known football player, German-Turkish superstar Mesut Özil stepped up and made a statement calling... 2020.12.01.
National Team Goalkeeper Gulácsi Donates HUF 25 Million for SMA Baby’s Treatment Péter Gulácsi, goalkeeper of Bundesliga side RB Leipzig and the Hungarian national team, donated HUF 25 million (EUR 69,000) and... 2020.11.27.
Family Tries to Raise HUF 730 Million for 10-month old Zsombi’s SMA Treatment Zsombi is only 10-months old but his life has been a constant fight for survival since he was born. He... 2020.09.18.
Following Hungarian Toddler’s Successful HUF 700 Million Treatment, Three Slovak SMA-Babies Receive it in Hungary A few months ago, the whole country joined forces to raise HUF 1.4 billion for two toddlers suffering from SMA... 2020.06.16.
Three Months After 700 Million HUF Treatment, SMA-Baby Zente Stands on His Feet As we reported a couple months ago, the whole country joined forces to raise 700 million forints for a toddler... 2020.01.29.
All SMA Patients Under 18 to Receive Free Treatment Miklós Kásler, Minister of Human Capacities, announced that an agreement has been reached with the only drug distributor for the... 2019.12.02.
Gov’t to Support People Suffering from Rare Diseases after Rejecting Opposition Proposals Gulyás Gergely, Minister of the Prime Minister’s Office announced at this week’s government briefing that the government will provide HUF... 2019.11.28.
Fundraising Started for Another Baby with SMA to Receive World’s Most Expensive Medicine Following the successful fundraising for Zente and Levente, two Hungarian toddlers suffering from SMA (spinal muscular atrophy) for their 700... 2019.11.04.
